About visibility

"International Angelman Syndrome Day is a date for visibility and awareness. Through the appeal of the GAMAS Initiative, the Brazilian Bar Association was lit in blue on February 15th, 2024 - joining dozens of buildings and monuments around the world illuminated to "shine light" on our cause.

But that wasn't all! Angelman families illuminated their own homes in blue. Neighbors lit up their homes in blue. Therapists and entire clinic teams dressed in blue. Friends dressed in blue and shared on social networks, promoting awareness of Angelman syndrome. Yohama Eshima, brazilian actress, recorded an awareness message at the request of the GAMAS Initiative, through a mutual friend.

But what is the purpose of all this? Visibility! And what does it serve? It serves to slightly alert a contingent of thousands of families living without a diagnosis. It serves to make people research what this Syndrome is. It serves to open a path of appropriate treatment for those who currently have none.

It also serves to bring acceptance. To make Angelman families feel seen, as rare families. It serves to receive each endorsement as a hug and an acceptance. And this matters. A lot. Very much so.

We would like to express here our eternal gratitude to each person and each institution that embraced the hundreds of thousands of people living with Angelman Syndrome around the world on February 15th, 2024." 

Daniel, Co-founder GAMAS Initiative for Angelman Syndrome