Dear family member of a child recently diagnosed with Angelman Syndrome,

There are many types of thoughts and emotions that surface when a mother and father (and other family members) receive from a doctor the news that their child has Angelman Syndrome.

You may be suffering, believing that your dreams have ended. It's common to feel alone, surrounded by doubts and affected by pessimistic emotions and thoughts. If you are like us, you probably feel shaken about how to manage this new reality, doubting whether you will have the energy and means to overcome challenges you never imagined before. You may also be apprehensive about how to communicate the diagnosis to others.

Feeling and thinking all this is normal in the post-diagnosis phase.

Take the time you need to process your feelings and thoughts.

Begin exploring our website only when you feel calm.

If now is not the right time, add the site to your favorites and return later. All the information will be here, waiting for you.

This will be a journey of ups and downs, a marathon, not a 100-meter race. Some days you may feel like you can't make it. Other days will be filled with pride, accomplishment, and joy – from the small victories to the major milestones.

Seek help, the Angelman community is large and ready to welcome you. If you can, talk to a professional therapist who can help you process your emotions.

We are in this journey together! God bless you!

Warm regards,

Fernanda and Daniel