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1. A multidisciplinary approach and consensus statement to establish standards of care for Angelman syndrome
1. A multidisciplinary approach and consensus statement to establish standards of care for Angelman syndrome
Authors: DUIS et al. (2021)
2. Preparing Your Individual with Angelman Syndrome for General Anesthesia
2. Preparing Your Individual with Angelman Syndrome for General Anesthesia
Author: ASF – Angelman Syndrome Foundation (USA)
www.angelman.org/wp-content/uploads/2022/01/ASF_Resources_General-Anesthesia-1.pdf
ASF_Resources_General-Anesthesia-1.pdf3. Seizure Treatment Guidelines
3. Seizure Treatment Guidelines
Author: ASF – Angelman Syndrome Foundation (USA)
www.angelman.org/wp-content/uploads/2021/06/seizure-resource_AS-Seizure-treatment-guidelines.pdf
seizure-resource_AS-Seizure-treatment-guidelines.pdf4. Management of Nonconvulsive Status Epilepticus
4. Management of Nonconvulsive Status Epilepticus
Author: ASF – Angelman Syndrome Foundation (USA)
seizure-resource_Outpatient-Treatment-of-NCSE.pdf5. Myoclunus in Angelman syndrome
5. Myoclunus in Angelman syndrome
Authors: Sarah Pollack, Olivia Grocott , Kimberly Parkin, Anna Larson, Ronald Thibert (2018)
https://www.angelman.org/wp-content/uploads/2020/02/AS_Myoclonus.pdf
AS_Myoclonus.pdf6. Seizure Action Plan
6. Seizure Action Plan
Author: Epilepsy Foundation (USA)
www.epilepsy.com/sites/default/files/2023-08/SeizureActionPlan2023ACCE.pdf
SEIZURE ACTION PLAN.pdfAdapted by GAMAS Initiative for Angelman Syndrome from the "Natural History Study Seizure Diary" (www.angelman.org/studies/angelman-syndrome-natural-history-study/)
8. Sleep Diary
8. Sleep Diary
Adapted by GAMAS Initiative for Angelman Syndrome from the "Natural History Study Sleep Diary" (www.angelman.org/studies/angelman-syndrome-natural-history-study/)
9. Physician’s Note - Symptom & Treatment Checklist
9. Physician’s Note - Symptom & Treatment Checklist
Authors: Dr. Lynne Bird, ASF and FAST (USA)
Physicians-Note-Symptom-Treatment-Checklist-AS-for-IEP-FINAL.pdf10. Angelman Syndrome for Educators
10. Angelman Syndrome for Educators
Author: Erin Sheldon, M.Ed.
https://www.angelman.org/wp-content/uploads/2021/03/AS-for-Educators.pdf
AS-for-Educators.pdf11. Physical and Occupational Therapy Best Practices, Tips & Tricks, Equipment and Resources for those Living with Angelman Syndrome
11. Physical and Occupational Therapy Best Practices, Tips & Tricks, Equipment and Resources for those Living with Angelman Syndrome
Author: ASF - Angelman Syndrome Foundation (USA)
https://www.angelman.org/wp-content/uploads/2021/05/PT-OT-Best-Practices-for-AS.pdf
PT-OT-Best-Practices-for-AS.pdf
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